Join us for a relaxed meetup for anyone impacted by ALS. Whether you are living with ALS, a caregiver, family member, or friend, this is an opportunity to connect with others, share experiences, and find support in a welcoming environment. No agenda, no pressure, just conversation,...
November 2026 We are thrilled to share important news for the ALS community: the ACT for ALS Reauthorization Act has officially been signed into law, extending critical programs that support ALS research, innovation, and access to promising therapies through 2031. Originally enacted in 2021, the ACT for...
The ACT for ALS Reauthorization Act of 2026 has passed both the House and Senate, completing congressional action and sending the legislation to the President for signature. Reaching this moment reflects years of work by people living with ALS, families, caregivers, researchers, clinicians, advocates, and ALS...
A Holiday Tribute Honoring Those Touched by ALS The holiday season is a time to gather, reflect, and remember those who have shaped our lives. On Thursday, December 10, 2026, ALS Rhode Island invites families, friends, caregivers, and supporters to join us for Lights of Remembrance, a...