5,600+
People in the US diagnosed per year
ALS Rhode Island works to advance the search for better treatments and a cure for ALS by supporting research, connecting patients with clinical trials, and advocating for increased funding and awareness. They help people living with ALS access specialized care, learn about new treatment options, and participate in studies that test promising therapies.
By partnering with medical centers, researchers, and community leaders, they aim to speed up scientific progress and improve the lives of individuals and families affected by ALS. Their efforts also focus on providing education, support services, and resources that empower patients and caregivers throughout every stage of the disease.
Register with us to access free, personalized services—available to all individuals living with ALS, regardless of insurance coverage or immigration status.
Once registered, you’ll meet with our Care Services Team, who will work closely with you to identify your current needs and plan for future support. Research shows that people with ALS who receive comprehensive, individualized care often experience a significantly improved quality of life.
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5,600+
People in the US diagnosed per year
35
Years ALS United RI has been active
10%
Percentage of cases that are inherited through a mutated gene
Everything we do advances the search for effective treatments and cures for ALS
ALS Rhode Island works to advance the search for better treatments and a cure for ALS by supporting research, connecting patients with clinical trials, and advocating for increased funding and awareness. They help people living with ALS access specialized care, learn about new treatment options, and participate in studies that test promising therapies. By partnering with medical centers, researchers, and community leaders, they aim to speed up scientific progress and improve the lives of individuals and families affected by ALS. Their efforts also focus on providing education, support services, and resources that empower patients and caregivers throughout every stage of the disease.
ALS Rhode Island supports a wide breadth of fields of study that are critical to advancing ALS research, including neuroscience, genetics, biomarker discovery, clinical care innovation, and collaborative approaches that accelerate meaningful breakthroughs.
At ALS Rhode Island, we concentrate our advocacy efforts on informing and rallying policymakers across the political spectrum to support legislation and funding that improve the lives of people living with ALS and strengthen support for families and caregivers.
Register with us to access free, personalized services—available to all individuals living with ALS, regardless of insurance coverage or immigration status.
Once registered, you’ll meet with our Care Services Team, who will work closely with you to identify your current needs and plan for future support. Research shows that people with ALS who receive comprehensive, individualized care often experience a significantly improved quality of life.
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