08 Nov ACT for ALS Reauthorization Signed Into Law Through 2031
November 2026
We are thrilled to share important news for the ALS community: the ACT for ALS Reauthorization Act has officially been signed into law, extending critical programs that support ALS research, innovation, and access to promising therapies through 2031.
Originally enacted in 2021, the ACT for ALS has helped accelerate research, improve collaboration among stakeholders, and create pathways for people living with ALS to access promising treatments. The reauthorization ensures that this important work can continue for years to come.
This achievement reflects the dedication of countless advocates across the country, including people living with ALS, family caregivers, healthcare professionals, researchers, and community organizations who have worked tirelessly to raise awareness and advance policies that support the ALS community.
While much work remains in the fight against ALS, this legislation represents meaningful progress and renewed hope for individuals and families affected by the disease.
ALS Rhode Island is grateful to everyone who helped champion this effort and remains committed to advocating for policies that improve the lives of people living with ALS.
Together, we move forward with hope.
