You are not alone.
Receiving an ALS diagnosis is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Register with Our Chapter
This is where you begin your personalized relationship with one of our highly trained ALS Care Services Coordinators, completely free of charge. See our Care Services here.
Why register? The team of professional Care Service Coordinators provide expert ALS advice and assistance free of charge. Call 401-732-1609 or email email@example.com to get started today.
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.
Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life. All Support Groups are facilitated by our professional Care Manager with extensive experience in ALS.