Newly Diagnosed

You are not alone.

Receiving an ALS diagnosis is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.

If you have been recently diagnosed with ALS, this comprehensive guide explains what you can do to get important support and resources now—and what you can do to plan for the future. Visit Your ALS Guide’s Newly Diagnosed Guide for ALS.

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Register with Our Chapter

This is where you begin your personalized relationship with one of our highly trained ALS Care Services Coordinators, completely free of charge. See our Care Services here.

Why register? The team of professional Care Service Coordinators provide expert ALS advice and assistance free of charge.  Call 401-732-1609 or email to get started today.

Learn More About ALS

Check out our pages answering the common questions of: What is ALS? Who gets ALS?

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

The Louise Wilcox ALS Clinic provides multidisciplinary medical care for local ALS patients. 

Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life. All Support Groups are facilitated by our professional Care Manager with extensive experience in ALS.

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A Practical Guide to Living with ALS

Your ALS Guide is an educational website for families affected by ALS. You can find trusted information, practical tips, video clips with experts, in-depth guides, helpful resources, and more at Your ALS Guide.