Advocate
As an advocate for ALS Rhode Island, you can help change the laws and policies that affect thousands of persons with ALS and their families.
Advocate
As an advocate for ALS United Rhode Island, you can help change the laws and policies that affect thousands of persons with ALS and their families.
What is Advocacy and why is it important?
An Advocate is someone who publicly supports or recommends a particular cause or policy.
ALS Rhode Island advocates for policies that would improve the lives of those with ALS, their families and caregivers. Since its inception, ALS RI has been involved in advocacy. The active engagement of people living with ALS and their family members has led to increased federal funding for ALS research, passage of the Medicare waiver for ALS patients, the establishment of presumptive disability recognition from the Social Security Administration, and state legislation in Rhode Island.
How you can help.
Our advocates are passionate about encouraging government officials at all levels – state, local, and federal – to improve awareness and resources for people affected by ALS.
Advocates affect real change in the way that our government responds to the needs of the ALS community.
Sharing your connection to ALS in person, over the phone, in an email or even a letter can help educate and mobilize our elected officials to take action! Advocates with ALS Rhode Island help change the laws and policies that affect all people with ALS and their families every single year.
Register with us to access free, personalized services—available to all individuals living with ALS, regardless of insurance coverage or immigration status.
Once registered, you’ll meet with our Care Services Team, who will work closely with you to identify your current needs and plan for future support. Research shows that people with ALS who receive comprehensive, individualized care often experience a significantly improved quality of life.
For more information, email
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