FINANCIALPROGRAMS
Financial Programs
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Financial Assistance Programs

We offer financial assistance to help ease the challenges of living with ALS. Our programs provide support for respite care and home modifications, designed to improve quality of life for patients and caregivers.

To qualify, applicants must:

  • Be a Rhode Island resident diagnosed with ALS
  • Provide an official letter of diagnosis from a licensed physician

Financial Assistance Programs

We offer financial assistance to help ease the challenges of living with ALS. Our programs provide support for respite care and home modifications, designed to improve quality of life for patients and caregivers.

To qualify, applicants must:

  • Be a Rhode Island resident diagnosed with ALS
  • Provide an official letter of diagnosis from a licensed physician

Respite Program

We partner with trusted home health providers to deliver essential services that support both patients and caregivers. These services may include homemakers, certified nursing assistants (CNAs), and house cleaning.

Participants in this program receive an annual stipend to help cover the cost of respite care, ensuring caregivers have the opportunity to rest and recharge while patients receive quality support.

Home Modification Program

We provide a one-time stipend to assist with essential home modifications that improve accessibility and safety for individuals living with ALS. Common modifications include installing ramps or making bathroom adjustments.

Families may also benefit from our partnerships with local vendors who offer special pricing on home modification services and equipment for our patients and their caregivers.

The progression of ALS varies significantly from one person to another. Responding to each person's individual needs, our organization is available to provide vital services and reliable information through strategic community partnerships.

Register with us to access free, personalized services—available to all individuals living with ALS, regardless of insurance coverage or immigration status.

Once registered, you’ll meet with our Care Services Team, who will work closely with you to identify your current needs and plan for future support. Research shows that people with ALS who receive comprehensive, individualized care often experience a significantly improved quality of life.

For more information, emailsupport@alsunitedri.org.• ALS Multidisciplinary Clinic• Equipment Loans• Transportation Program• Support Groups• Support and Resources for Children• Financial Assistance ProgramsPROGRAMS & SERVICESALS Rhode Island Services
5,600+

people in the US diagnosed per year

2-5

is the average life expectancy

Only 10%

of cases are inherited through a mutated gene