Our Care Services
The progression of ALS varies significantly from one person to another. Responding to each person's individual needs, our organization is available to provide vital services and reliable information through strategic community partnerships.
Register with us to access free, personalized services—available to all individuals living with ALS, regardless of insurance coverage or immigration status.
Once registered, you’ll meet with our Care Services Team, who will work closely with you to identify your current needs and plan for future support. Research shows that people with ALS who receive comprehensive, individualized care often experience a significantly improved quality of life.
For more information, email support@alsunitedri.org.
Consultations Virtual & Home Visits
Members of our Care Service team will provide you with an overview of our organization and the services we provide, and assist in care planning and management.
ALS Multidisciplinary Clinic
The Louise Wilcox ALS Clinic at the Rhode Island Hospital.
Equipment Loans
We have varying equipment available for loan, at no cost. We will deliver directly to your home and set up. Our current inventory includes standard, transport, and power wheelchairs, hoyer lifts, hospital beds, rollators, standing rollators, AAC devices, and Obi feeding devices.
*Please note equipment is based on availability.*
Transportation Program
Our team will help schedule medical transportation for patients attending medical appointments, including appointments to the ALS Clinic.
Support Groups
In-person and virtual support groups for people living with ALS, family members, and friends.
Support and Resources for Children
It is not easy to talk to young ones about ALS. We have resources for young people of all ages.
Financial Assistance Programs
We offer financial assistance to help ease the challenges of living with ALS. Our programs provide support for respite care and home modifications, designed to improve quality of life for patients and caregivers.
To qualify, applicants must:
- Be a Rhode Island resident diagnosed with ALS
- Provide an official letter of diagnosis from a licensed physician
Full details for each program are outlined below.
Respite Program
We partner with trusted home health providers to deliver essential services that support both patients and caregivers. These services may include homemakers, certified nursing assistants (CNAs), and house cleaning.
Participants in this program receive an annual stipend to help cover the cost of respite care, ensuring caregivers have the opportunity to rest and recharge while patients receive quality support.
Home Modification Program
We provide a one-time stipend to assist with essential home modifications that improve accessibility and safety for individuals living with ALS. Common modifications include installing ramps or making bathroom adjustments.
Families may also benefit from our partnerships with local vendors who offer special pricing on home modification services and equipment for our patients and their caregivers.